9/10

Happy Birthday to my BROTHER today, and my sweet NIECE, who turned 2 yesterday!! XOXOXO

Anyway, my Mom is still doing wonderful. She is talking still which just makes us all so, so, SO happy! She is very cloudy with beautiful moments of clarity! And again, it seems the more tired she is the more foggy she is. Makes sense. But she is healing, fighting and getting a little better every day. We are still hoping to get the trach out completely this week which will help her speak up a little bit. She is quiet, yes, no one ever thought we would use that adjective to describe her…including HER πŸ™‚ She makes jokes about it all of the time πŸ™‚ As always, her sense of humor is amazing, but she does get a little down. Duh. She also is worried she won’t get any better, and this is what he life is going to look like forever. We all know that is nonsense, as it hasn’t even been 2 months! She told me she was a little fighter the other day…God is she ever. Still seeing lots of promise in the left leg, but I personally don’t feel that great about her left arm. Big deal…we can work around that! She didn’t quite pass the swallow test yet so still nothing by mouth. Not even the lollipops I tried to smuggle her πŸ™‚ but she is not on a constant feeding tube either, which means she gets a set dose, quickly, about 4 times a day. WHICH MEANS she is hooked up to nothing most of the day WHICH MEANS she can go outside πŸ™‚ My Aunt Sandy got to take her outside yesterday, where she remained for 2.5 hours and just soaked up the wonderful, warm sun on her beautiful face! She did not want to ever go back in and who could blame her. It wiped her boney butt out then, and during my visit (watching the Eagles almost lose with her) she was out like a light. If you are there and it is a nice day and she is dressed appropriately, ask to take her out. She will be over the moon!
This is a tough month for me and I am sure, my brother as well. We would want nothing more than for her to be able to help us celebrate our/kids birthdays (Max also turns 3 this month). It just isn’t the same without her, but then again,Β nothingΒ is. Clinging to the hope of even brighter days ahead. We have a long way to go, but we have come SO far…which is what we need to remember when things get tough. She is a miracle and no one knows what tomorrow may bring πŸ™‚
As always, thank you all. Your thoughts, prayers, love, visits, cards, flowers, books, pictures, support, balloons, and hope are really working. Have a wonderful day!
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