4/2/13

Hi everyone! Hope you all had a fantastic weekend and a very Happy Easter! We sure did! Went to Brent’s family on Saturday and spent the day with my family on Sunday with a BIG part of the day spent with Mom. Lots has happened since the last time I wrote and its all GOOD!! πŸ™

Well, the medication is all taken care of. It turns out that those two medications that were missing pills, my Aunt Sandy picked up for us so she got it all taken care if and CVS gave her the missing pills so we are good to go! Way to go Aunt Sandy!!

In addition, Mom is now moving both her left LEG ANNND ARM!! Talk about AmAzEbALLz!!! I know I mentioned it the last time I wrote but I can’t get over it! She can basically stand up with very minimal assistance to move from wherever to the wheelchair or vice versa. She even started taking steps with her physical therapist! She’ll be the first to tell you it’s ugly but who CARES – it’s happening!! She also started moving her arm a little bit. In fact, she can get from her wheelchair to the couch all by herself! Now I haven’t seen this stunt in person thank goodness (sounds scary) but she did it about 5 times the other day. And shes getting around in her chair by herself and is becoming quite the driver!!! LOL. Her spirits are very high! Her hair is growing out. In fact, she called me today (Marilin helped her dial) and I was taken back because she sounded like my old Mom!! So freggin excited!!

So it’s been going AWESOME!! Then on Sunday we took her to church! What a great time. Mom sang her little heart out – all of our Easter favorites. Pastor Carol gave her a big shout out during the service. I’d tell you what she said but I don’t even know because I was bawling like a darn baby! Then she said something about me – LOL, however I don’t know that either because by this point I was embarrassing myself! But it was so so wonderful! Ahhh. I’m just so happy. Here are some random pics:

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Standing basically on her own!

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Kids basically use her wheelchair for a jungle gym! πŸ™Š

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Love this picture so MUCH. The kids are really coming around which warms my heart like no other. They get excited to go now. When I here Molly chant Go Memaw, Go or Max say You Can Do It or Memaw You’re Getting Better or Memaw, You Talk Fast Again – I tear up. You know it’s real when a 3 year old says it and if that’s not motivating I don’t know what is. πŸ’“

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And of course we painted EGGS!!

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And had our very own Easter Egg hunt!! It was a great day. Forgot to mention one little thing!! Our favorite Marilin struck it big! My cousin, my Aunt and Marilin took to the casino for the day to celebrate my Aunts Birthday we had a big WINNER!!!

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Congrats!! πŸŽ‰πŸŽˆπŸš¨ You certainly deserve it. Could NEVER thank you enough for all that you do. Xoxo. Love this pic!! PS – she didn’t win 100,000 although I’m sure she wishes she did 😜Ok! Think that’s about it! Thanks for continuing to follow this incredible journey with us!! Have a great night!! Xo

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3/13/13

Hi friends!! Big news to report here. Mom is MOVING her left leg like you wouldn’t believe! She can wiggle it, move it, kick it, lift it…you name it and we are over the πŸŒ› with happiness and excitement for her future. This shunt adjustment has been amazing. She is so full of life! So full of energy. It’s unreal!! This movement all started yesterday. What a freggin roller coaster. Never ENDING highs and lows but thankfully we have been having more high. With that being said, when she’s full of energy, she’s full of energy, which led to another face plant yesterday. πŸ˜³πŸ‘Ž but she is fine. Just the usual, I forgot I couldn’t do that anymore stunt. Little bump. We had a talking to her. It’s so hard because I know it’s hard for her to remember her new limits – but for goodness sakes we don’t need another set back because squirrly decided she needed to pick something off of the floor. I continue to be filled with hope and excitement for her future but this whole situation is hard work. Now Marilin (please refer to her as Marlene because that’s as close as out whiteness can pronounce her poor name πŸ˜‰) can’t leave her alone for a second. And the never ending medicine, phone calls, letters, phone calls, bills, phone calls have me under a tremendous amount of stress. But at least it seems to be getting us all somewhere which really helps.

But on a serious note – I’m having an issue. Her medication, which I put in her pill boxes days in advance has become a problem. Her insurance would only approve her meds for 3 months. Some jars have 90 pills, some have 180. One pill has 360! Well her anti depressant and her blood pressure medication (both taken twice a day/both say 180 pills on the jars) do not have enough in them. I only have enough to get her through march 25th meaning I don’t know what happened to the rest of the pill which are supposed to last until mid may. I spoke to both pharmacy managers today and they swear they put the correct amount in the jars. I have NO IDEA where the remaining pills are and CVS and her insurance won’t give us more. I have no clue where they went or what to do. Any advice here would be GREATLY appreciated as I am at a lost. I meticulously load those pill boxes and don’t know how 120 pills have disappeared. Please help!

On a happy note – the kids and I gave Marilin a well deserved break for a few hours today!

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Went for walks, had a tea party. It was a ton of fun. We also celebrated my birthday tonight with a pizza party πŸŽ‰πŸŽˆπŸ˜. Her spirits continue to be up and she is once again a good time to be around although her frustration is evident at times. And the biggest news of the day is that my brother and sister in law are going to be giving birth to another beautiful baby GIRL!!! πŸ’“πŸ‘ΆπŸ‘­πŸ‘™πŸŽ€πŸ‘›πŸΌπŸŒΈπŸ’πŸ‘šπŸ‘―πŸ‘. Huuuuuray for little girls!

Dropping the kids off tomorrow at the inlaws and Brent and I will be meeting on Friday for the weekend to see Kenny Chesney in sunny Florida!! Will be in touch sometime next week!! β˜€πŸŽΆπŸŒ΄ Have a wonderful weekend my friends and Happy Saint Patricks Day!! πŸ€

3/10/13

I’m sure Mom would be ticked off at this picture BUT….

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*Little* different from how she was at the Trexlertown Fire Company breakfast just 4 short months ago. Ahhhhh. πŸ’“πŸ’“πŸ’“ Looked at this picture all day. I’m just so happy for her. Thank you SO MUCH for taking her Aunt Sandy. What a great idea πŸ˜‰ Xoxo

3/8/13

Sick of me yet πŸ˜‰ Look at how beautiful Mom looked today.

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Took her to get a brace for her left ankle. She is completely different!!!!! So much better!! Just like right after her last surgery. I’m so happy I could πŸ’©πŸ’©πŸ’©!! Just had to share. Happy weekend friends! Xo

Brent’s Birthday Celebration!!

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We had SO much fun. Oh my gosh we laughed. Mom said she hated her beer but drank every drop stating she ‘refuses to believe that she no longer likes it’ and ‘its her worst nightmare’. LOL. Brent was a great sport. As always! Hope all of you had a great night too. πŸ»πŸ˜‰πŸŽ‚πŸ΄πŸŽˆπŸŽ‰πŸ’š

3/6/13

Hi friends! Just a real quick update with some awesome news for Momma. First, speech therapy had its last visit. They think Mom is well. I’m not sure if they know or not but Mom hasn’t used her feeding tube ONCE since she’s been home and feels great! She’s regular (sorry if TMI πŸ’©πŸ˜œ). She seems to be putting on a *little* weight. Hope to get that tube out stat. Then the nurse called and said she is THRILLED with how Moms doing. She said she thought for SURE her tailbone was coming out. We can thank the one and only MARILIN that it didn’t! She said she was very impressed with the whole situation and does not feel the need to return again. Oh my that was music to my ears. And THEN my brother took her to the Dr. today and there is even MORE good news. We told her about how she seemed to be going back a little bit with her energy and whatnot. He said he expected this, her x-ray was perfect, did a shunt adjustment and in a week or two she should me MUCH better and we should see major (and he said major) improvements!! πŸ™ She had a catscan Monday as well and that was good too! We are DOING it! It’s gonna work! I can just FEEL it! Ahhhhhh!! I’m so happy!!

Tomorrows Brent’s birthday! 32! πŸ‘΄πŸ˜˜πŸ’“ Going to tour Martin Guitars! 🎢🎸🎢Then this weekend some friends and a pub crawl!! πŸ»πŸ’šπŸ€Life is beautiful and filled with hope! Hope I didn’t jinx it but its too hard not to get excited about the great times. Thank you for continuing to care about my Mom through all of the good and bad times. And sharing all of the happiness in the great times like this. Have a good week/end. Xo

3/2/13

Hello guys! Hope you are all doing well! It seems as though if we can make it until Thursday, spring is JUST about here!! Thank goodness! So ready for birds, flowers, and lots of sunshine!! I know I’m not alone here πŸ˜‰πŸ’β˜€πŸ‡

Mom is doing well. Well, the last time I wrote was the best I’ve seen her yet! I was so excited! she was with it and spunky as all heck! But every day since then she’s seemed a little off to me. Lethargic. Whispering. Not really even looking at me. Told me she was mad at me for ‘everything’ LOL! Then I start thinking is she depressed, is it all of the meds, is it the shunt, are we having a relapse…the never ending questions without answers start racing through my head and I can’t shut them off. BUT, I think this is just the way it’s going to go from here on out. She’s eating up a storm, Marilin died her hair nice and BLONDE like she wanted it. Marilin is AmAzEbALLz. My family all wants to chop off a leg to have her take care of them! LOL. Not gonna lie, she puts the biggest smile on my face when I’m there and is becoming a huge reason for my visits. She’s the best! 😘 Oh, and I know she’s been having many visitors! Thank you from the bottom of my heart for that. That is the most important thing we can do for her right now! Visit, show her she’s loved. Thank you all. AND, I’ve been hearing that toilet seats a hit and has been getting its use as well. LOL. πŸ’©πŸ’© Hey – whatever gets you there. 😜

Things are going great with us. House continues to come along. Kids continue to be the most beautiful things ever. Brent was home for the entire week and it was awesome. Continuing up! πŸ™ But my heart is breaking for my brother. His best friend died this week. 31. Beautiful little girl. From the flu. David Muller. I just can’t believe it. 2nd funeral for me this week so PLEASE. If Mom wasn’t reminder enough – this life is WAY TOO Short. And way to unpredictable. Please enjoy today. And every day. Be nice to each other. Love one another. Let the person turn at the light. Lets make this world better! πŸ’“πŸ’“πŸ’“ Have a wonderful weekend my friends and think SPRING!!

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Picture of Momma, her man, and my brother and sister-in-law from last weekend. LOL.

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Pic Marilin sent me of Moms new BLONDE locks!! πŸ˜‰ Hubba HUBBA!!

2/21

Hello everyone!! Hope you are all well! Just checking in. I’m excited and so relived to say that things are settling down for my family and Mom! Thank goodness!!! πŸ’“πŸ’“πŸ’“ As far as Mom, we all continue to think Marilin is a gift from above. Not ONLY does she take exceptional care of my Mother – but she also made me home made empanadas for dinner tonight!! Double SCORE!! πŸ˜œπŸ‘πŸŽ― I finally got all of Moms meds and things figured out. That alone was a nightmare. I mean – I need to post a picture of her daily meds. It’s shocking. Her new toilet is awesome!! Reason alone to visit. LOL. It washes, rinses, deodorizes, dries – all while delightfully heated and remote controlled. Holy bat balls. Toilets have come a long way! I want to take her bowling and things but therapists and nurses are in and out ALL day LONG. Her tailbone is doing well thankfully. Aunt Sandy got her some cushions and the chair lift thinger is good so she can lay down without being in bed all day. She was so GOOD today. I mean – this was the best I’ve seen her yet. She was trying to step on the kids toes with her good foot, and trying to grab their little noses. Oh, she just looks at them and smiles. I’m so glad the kids have adjusted. They were dancing for her tonight – putting on quite a show and she ate it up. Speaking of eating – she ate a TON today!! It just feels so good. I know I’ve said it before but I think going home saved her spirit/life. She looks so happy. And that makes me very happy. πŸ’ž

Brent will be home around midnight and will be home for 2 whole weeks!! πŸ™ We haven’t had any surprises at the house for over a week (knock on wood). And our basement is almost all done! Starting to feel like home. The kids are wonderful as always…I think after 7 months – we are finally reaching a new normal and it feels so so good. Fun Friday and weekend planned with family! Bounce U with Aunt Jenny and Jaidyn followed by a weekend with Aunt CC and Uncle D. I can breathe again, and it makes me happy. Thought I was gonna lose it there for a while and was about to get some meds (not that there’s anything wrong with that). But I truly was worried about my sanity and stability. I knew if I could hold on a little longer I would be ok. I know we will have bumps along the way, but I think we made it ☺ Thank you God. And thank you all. And thank you Brent, Max and Molly. My world. Have a wonderful night and weekend my friends πŸ’“

2/13

Remember this little place?!

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Check it out now. πŸ’“ Railing is going in next week if the weather cooperates. 🌞

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And here is the back. There was only a window back there. Well that just wouldn’t do πŸ˜‰ We all know Momma likes to be out side!

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And here’s the last picture from today!

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Dustin took her to the Doctor. It went really well. Another nurse comes to see her tomorrow at 10 and then a therapist at 2! They are wearing her out. They dropped 1 prescription today. 12 more to go! She is eating up a storm. She was a little sad today. Saw her cry. Tears. For no reason, other than, she was sad. 😒 Broke my heart. But I try to tell myself that seeing her have emotions means she’s getting better. I have so many days lately, where I just want her to jump up, laugh her beautiful laugh and chase Max and Molly around. Or more importantly, give me a hug, the only way your Mom can. They same time will make it better, but it’s not. Maybe even harder. But we all push on with fantastic memories of our old Mom, excited to make many more memories with our new Mom. 🌟 Going over to make valentines and cupcakes with the littles in the morning so Marilyn can take a nice break. We still love her so. What a fantastic woman she is. A godsend. And then friday I’m of to NJ to pick up a lift chair! Good night friends. And Happy Valentines Day. πŸŒΉπŸ˜β€πŸ’Œ. Mine will be home soon. Xoxo